• jerry cochran

    How can I get a levo system that makes sounds in your ears?

    November 15, 2018
  • Terry Proveau

    Sudden sensorineural hearing loss in 2001. 100% loss of hearing in right ear. Severe tinnitus on right side ear area. Very high pitched loud as a smoke alarm 24/7. Quieter a bit in quiet environments. Hyperacusis also. Sometimes only two people talking at the same time in a room can bring on a severe, full feeling head, and I loose the ability to cope with the environment, and have to go to a quiet place. Sleeping is pretty decent as the noise quiets down some when I lay on my good ear which blocks out all sound. My question is do you recommend any sound generation techniques/apps for someone with 100% hearing loss in the tinnitus affected ear? Any white noise or nature sounds etc. apps I have tried so far are just annoying to me and my tinnitus gets worse very quickly when listening to them.
    I cope fairly well now after 17 years with T. I actually receive Canada disability pension (lots less then working but it helps) after several years of applying, trying different employment types, and paper trails etc. from my doctor. I avoid stress whenever possible and tend to avoid crowds most of the time. I can handle noise for a while like an hour church service, restaurant etc. and do well until suddenly my head goes south, I get overwhelmed and have to leave the situation.
    Sorry to ramble on however I have read quite a lot on your website and you have a great grasp of the scope of T & H and I would value your opinion particularly on 100% deafness in one ear T & H therapy, as I have found little information on such available so far. Thanks

    August 28, 2018
    • It’s a challenge since sound therapy works in hearing ears – not for total HL. If you used sound it would be for general relaxation. Some people like brown noise. This is a nice sound generator site I just found with many different relaxing options https://mynoise.net/noiseMachines.php
      This is some recent science on cochlear implant for a person with unilateral HL and severe T-H. https://www.ncbi.nlm.nih.gov/pubmed/29929187 My understanding is it’s hard to get into cochlear implant programs if you still have hearing.
      The Silverstein Institute in Sarasota Florida is doing inner ear round/oval window reinforcement surgery, and that’s helped a few people with H but it’s still in clinical trials.
      Otherwise, mind therapy techniques are most helpful but don’t change T-H, just reactions to them. e.g. cognitive techniques, deep breathing, relaxation exercises.
      I’m glad you’re coping fairly well now. Thank you for taking the time to comment. 🙂

      August 28, 2018

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